Friday, October 8, 2010

Final Arrangements

For anyone interested of attending the services for Stan, we will have one in Maryland and in Utah.
Monday, Oct. 11
10 AM-Viewing 11 AM-Funeral
LDS Stake Center
10000 Stoneybrook Drive
Kensington, MD 20895

Saturday, Oct. 16
9 AM-Viewing 10 AM-Funeral
Allen-Hall Mortuary
34 East Center Street
Logan, UT 84321

Thursday, October 7, 2010

A New Beginning

Stan went home peacefully to his Heavely Father this morning. Thanks for all of your support, love and prayers.

Saturday, October 2, 2010

New Normal

One day when we were at the doctors we were told that as we moved through this process we would hit bumps and then they would be the new normal. I think back to just a month ago and how worried I would be is Stan was in this shape, but he has moved through the stages gracefully and without complaint. After about two days and some anti-nausea medicine, Stan is feeling better. He is able to drink one Carnation Breakfast a day. He is pretty weak so he spends his day in the chair or the bed.

Wednesday, September 29, 2010

Hospice Care

Stan's Hospice nurse came yesterday and the social worker came today. They are very helpful and really have Stan's best interest at heart. Stan started having waves of nausea yesterday. This has made if very difficult for him to want to eat or drink anything. Yesterday he was able to keep down a carnation breakfast he ate, just before he went to bed. It is after lunch today and Stan has only been able to drink about a half a glass of Gatorade. I hope this will pass soon so that he can take in more food. The social worker said she would have his nurse check on some anti-nausea medicine. Stan enjoys the book he is reading, "Retreat from Gettysburg" and the visits from our church friends.

Sunday, September 26, 2010

Anniversary

Thirty-five years ago today, Stan and I started our eternal journey together as husband and wife. He has, and is continuing to bless and teach.
He has not been able to attend church for the past 3 weeks, so the young men brought him the Sacrament today. He has only been able to eat a few bites of solids in the past week so he is quite weak, but his spirits are high.
Tom was able to spend a few hours with us this morning, on his drive home from Georgia. He put 8 1/2" by 11" pictures of Stan with each one of his grandchildren, on the wall across from Stan's chair. Stan has enjoyed just sitting there looking at the pictures. His family is so important to him. Thank you so much Tom and Erin for getting the pictures and framing them.

Thursday, September 23, 2010

Busy Times

Tuesday Stan and I went down to his office for a couple of hours. I took his pictures off his walls and collected some of his personal items. Wednesday the hospice Chaplin came and we had a wonderful visit. He talked with us about what we believed about dying and the afterlife. He was pleased that we both felt the same about what would happen. He told Stan that he would continue to teach those around right to the end. He let me know that Stan's desire to eat would continue to decline until he would stop eating and I was not to feel guilty, and that Stan would stop talking but that we were not to stop talking to him. It was hard to hear but there was also a peace. I did need some time after Stan took a nap to just wrap in the 'magic quilt' and feel loved. Today I took Stan to his HR office to sign his retirement papers. They will take effect on September 30.

Tuesday, September 21, 2010

Time Together

I start my long term leave today. I was lucky to get some great substitute teachers for my classroom so that I can relax and just concentrate on being at home. Stan continues to decline. He hasn't felt well enough to attend church for the last two weeks. He hasn't left the house for about a week and a half, when his boss had to drive him home because he had a dizzy spell at work. As his body slowly gives up on him his mind still plans for the days when he will feel a little better. He is still hoping to get to work to put in about 3 hours, to put the finishing touches on his last project. We had some wonderful visits from church friends last night and he lit up at the package of pictures of his grandchildren from Tom and Erin.
Thank you for being there to share this journey with us. We love you and thank you for your support.

Friday, September 17, 2010

Hospice

This has been a busy week getting set up with hospice. Tuesday we meet for two hours with the intake nurse. Ben, Tom and our high priest group leader were here to lend their support. Wednesday, the hospice social worker met with Stan and Tom while I was at work. Stan's hospital bed, wheelchair, walker, shower chair etc. were delivered. Stan's nurse came just, as I was getting home. He is from the Philippines. Stan showed him his pictures from his mission in the Philippians. I think it will be a good match. Everyone has been so caring.
The hospital bed has helped Stan get a little more comfortable.

Monday, September 6, 2010

Pop Quiz

I know this blog is about Stan but since Stan and I and eternal partners I will write about me today. I don't want this to sound old, but I am so overcome at how much or Heavenly Father loves and knows each one of us and what we need. Today I received a pop quiz. Stan was in the shower so I picked up the yard and got the lawn mower out. I decided to check see how the laundry was coming along before I started mowing the lawn. When I went downstairs I found the basement flooded. The extra credit on this quiz was I had just put all the towels in the washer. I was so grateful that I had this challenge while I still have a coach and on a day I was home from work. I think I received an A on the quiz since I cleaned up so nicely after myself but Stan received an A+. He was a great coach.
Tom and his family were here for the weekend. I told Tom that I was concerned about Stan being at home all day by himself. I felt the days would get very long for him. As soon as we got to church yesterday, Brother Peterson came up to Stan and asked him when he could come visit. We are all right because we have so many wonderful friends and family.

Thursday, September 2, 2010

Oncology Visit

Stan had a visit with his oncologist today. The meeting was mainly about making Stan as comfortable as possible. He signed a paper so we could get a handicap sticker for the car. He also changed Stan's pain meds. and emailed Hospice to contact us about receiving help at home. The oncologist did not give us the percent of Stan's liver function, but he said it was working adequately. He will have the papers filled out for long term leave as soon as Stan wants it done. Stan is still going to work on the days when he feels well enough to go.

Tuesday, August 31, 2010

Birthday Greetings

Stan appericates all of the well wishes he received today for his big 60. He also reads the comments on the blog and is very greatful for all of your prayers.
Stan's has been able to slow down his weight loss by drinking Carnation Instant Breakfast.
I struggled to come up with some way to celebrate Stan's birthday, since most celebrations are around food. On Sunday Stan mentioned that he would like to try Velveeta cheese. I bought some on Monday but didn't give it to him until today.
I cut a small square of cheese into a heart and stuck a birthday candle in it. He was very suprised and happy when he saw it. And the best part, HE ATE ALL OF IT !

Wednesday, August 25, 2010

Back At Home

We spent almost a week in the Salt Lake area visiting our children, grandchildren and Lila's mom. We were able to get a wheelchair so Stan enjoyed the zoo and other activities with the grandchildren. Our son Tom and his 6 year old daughter, Emma flew out from New York to join us on our trip. On Thursday, Aug. 5th we went to Saint George. We had a wonderful weekend with Stan's brother Max and his sisters. On Monday, Aug. 9th we started our drive home. Tom and Emma came with us. It took us 4 days to get out of Utah because of all the beautiful country. Stan has always loved southern Utah. Our honeymoon was hiking the Grand Canyon. We took it slow and visited many National Parks. When we went to the Great Sand Dunes National Park in Colorado, they had special wheelchairs for sand. Tom was able to push Stan up the dunes so that he had a great time.
We arrived home Monday, Aug. 16. Stan went back to work on Wednesday.
He feels weak and has a difficult time eating. This has caused a drastic weight loss. He emailed his doctor and after some blood work, he was scheduled for a blood transfusion.
He had his blood transfusion today, as an outpatient at the hospital. It took all day. We were hoping that it would give him some energy but so far he said he just feels strange. Hopefully he will feel better tomorrow.

Sunday, August 1, 2010

The Journey Continues

Stan and I started our trip across the US last Thursday (July 22nd), but before we left Stan had a wonderful surprise. Amanda came over Wed. night and presented the 'magic quilt' to Stan. In her quiet caring way she told him about the quilt and the love that went into its creation. Stan was very touched.

We brought the quilt on the trip and have told people of its message as we have traveled.

Our first destination was Nauvoo. We rented a house, overlooking the Mississippi, just outside of Nauvoo. All of Lila's living siblings except one, and some spouses spent 4 days touring, watching the pageant, in the rain and attending the Nauvoo Temple. The spirit of the sacrifice and their devotion to God, stayed with us wherever we were. Unbeknown to us when the trip was planned, it was a miracle that we were there at that time. In mid-December I decided to rent the house and set the dates, even though very few could commit at that time (I have seven sisters and one living brother). Stan's cancer had not been confirmed when the trip was planned but by the time we left on the trip he was at a point where he could leave the doctors behind but still be well enough to travel. A few days before she was to leave for Nauvoo, my youngest sister was diagnosed with bladder cancer. She went right to surgery but was well enough to travel to Nauvoo and be back for her next appointment. We didn't know this would be our only window of time, but the Lord knew and he knew how important that it was that we spent this time together.

After Nauvoo Stan and Lila and 4 of our relatives went to Mt. Rushmore. Stan got very sick at the site and Zelda, (Lila's sister) picked a man out of the crowd and asked him if he was a Mormon and could he help give a blessing. We found a spot that was away from the crowd and circled Stan. This young man, that was a stranger to us, gave Stan the most powerful blessing. As his voice cracked he spoke to our Heavenly Father and to Stan as if they were both his best friends. It was such a moving moment.

Stan and I left so that we could find him some medicine and help if he needed it. The next day we drove past Martin's Cove and decided to stop. It was too early for the buildings to be open so we started the two-mile walk to the cove. We took it slow and stopped at the benches to admire the view and rest. Stan was getting very tired but we could see a little cabin ahead and pushed on. The cabin was manned by 3 senior missionaries. Stan sat on the bench and asked them if this was the cove. When they said that it was a mile farther up the trail you could see the pain on his face because he wanted so much to see the cove, but he knew he could go no father. I explained to the missionaries his condition and his desire. One of the sisters went into the cabin. She used a walk-e-talkie to ask them to send a rover up to pick up Stan. A wonderful missionary drove us up to the cove. At the cove he explained what happened there and told us we could take all the time we wanted. The spirit was so strong, as we held onto each other and looked at the spot were so many had given so much, I couldn’t stop crying. Their faith was so strong and even though their trials were great, they were never alone. As we drove down I looked out across the mountains and saw a handcart company coming in. It was about a mile long of youth and leaders experiencing their own faith promoting experiences.

Friday night we were in the arms of our sweet little grandchildren. Stan wanted them all to see the 'magic quilt'. As I told them the story of the quilt I could see Stan lovingly rub his hand over the quilt. This is when I knew how much the quilt meant to him. I would like everyone who was involved in this magic to know how much it has touched our lives and the lives of all of those who love Stan.



Tuesday, July 13, 2010

A New Beginning

We went to John Hopkins Kimmel Cancer Center today, in hopes that they would have something new to try. The doctor was very well prepared. She had studied Stan's case and listened to all our concerns. Because gall bladder cancer is so rare, there will not be any clinical trials for just for his type of cancer. She said we could likely get into a phase one trial where they test new drugs. The other option is to go back to Stan's oncologist and start with another round of chemo. None of the options have much of a chance of helping him. At this time we have decided it may be time to stop with the medical procedures and just enjoy life. We will start with a reunion in Nauvoo, Ill and then go to Utah to visit our families. This is not the end but a new beginning.

Thursday, June 10, 2010

Meeting with Oncology

We meet with the oncologist today to get the information about the CT scan and what comes next. The tumor in the liver has grown some but the tumor in the gall bladder has about doubled in size. It is now about 7 1/2 cm. We discussed the chemo options. The first type of chemo they tried was they type that was most likely to succeed. When it failed they went to the second most likely. We are now on our third type. The decision was made to wait on the tablet form of chemo until we check to see if there are any clinical trials, that will take him. We are checking with NIH and Johns Hopkins. When we have heard back from both of them, we will meet and decide where to go from here.

Monday, June 7, 2010

Bad News

Stan got a call from his oncologist today. The chemo he is on is not working. Stan took it pretty hard. He will start Tarceva on Thursday. It is a tablet form of chemo. We can only hope for the best. It was wonderful to come home to a bowl of mulberries on the front step. Thank you Amanda and family.

Sunday, June 6, 2010

Mulberries

I wasn't going to update the blog until we had more information about the CT scan, but this was too good to pass up. Yesterday we were driving to the hardward store to get material to finish the deck. When we were sitting at a light, I noticed a mulberry tree dropping it's fruit all over the sidewalk. Stan loves mulberries. We talked about the many times he would come home from a walk with purple hands and face. Because he hasn't taken walks this summer he has not eaten any mulberries. When we got home Stan sat out on the deck to rest. A little while latter he came in and said, "Look at this". There in his had was a perfect little mulberry with it's stem. Knowing we didn't have any trees I asked him where he got it. As he was sitting on the deck it fell out of the sky onto his lap. Birds fly over and leave their poop but I have never have them leave their food. I have always been told, He has no had but our hands, I think he may have more than our hands. Have a wonderful day.

Thursday, June 3, 2010

Warm Weather

Stan had a CT scan today. We will find out the results next Thursday. He has been pretty sick today. I think it was mainly the two big bottles of thick milky stuff he has to drink for the scan. I am so glad it is summer. Stan gets cold very easy. The 80 - 90 degree weather we are having, has made him feel more comfortable. Monday 5/30, we went to Mount Vernon with a niece and her two sons, that were visiting from Idaho. I can't think of a better place to be, than the home of George Washington, our founding father on Memorial Day. We had a wonderful time. Stan is still going to work. Some days he comes home pretty tired but he has such a drive to keep going. Your prayers and well wishes are greatly appreciated.

Thursday, May 27, 2010

A Few Things

Last night was a beautiful evening so we decided to sleep out on the new deck that we built last fall. The stars were hard to see but we were entertained with a firefly show.
We are now concentrating on food. Stan has been told to keep his weight up but food has started to have no taste or a bad taste. Even water now has a strange taste. He has found a few things that he enjoys. This has led to separate suppers because I am not up to 2 pieces of garlic toast for supper.

Friday, May 21, 2010

Chemo Again

Chemo again today. All went well. CT scan scheduled for June 3rd to see if this form of Chemo is working.